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Living with Erythromelalgia Patients Support Community

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Hello world!

December 27, 2022December 27, 2022 livingwitherythromelalgia_312j5l

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Why Join

Recommended Reading

  • New member introduction
  • Thank you for
  • Eating for EM
  • Bobs protocol Michelle 2
  • Bob's Protocol with Michelle

Ben's Friends Sites and Social Media

List of Ben's Friends Patient Communities
Ben's Friends Facebook
Ben's Friends Instagram
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Ben's Friends YouTube

Testimonials


Being able to communicate with others around the world that have EM really helps. We share tips to help us get through this difficult problem called EM. Sometimes, we can even share what medications have helped and mention that to our doctors.


Also, little things like what sandals someone can tolerate can be helpful to another person with EM.


I am truly thankful for this support group, Bens's Friends!

--- Jewels, LivingwithErythromelalgia

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Ben created this wonderful site. His Twitter feed is filled with many stories of hope over great challenges.

Sharyn

Ben’s Friends continues to expand this gift of love and support by creating more communities for folks sharing different great health challenges. Ben’s growing patient support sites continue to provide support with its members while new members share the challenges and share the joys. Thanks to Ben, Shalon and all the others who manage this site. It is a gift that keeps on giving.

--- Sharyn

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Your website then was my biggest support.

Pat

We met back in 2006, in Austin at St.Davids. I and my daughter, Britanny, who was then 16 years old were new to the site. Your website then was my biggest support and we came to know that so many others are struggling through very similar issues. Today Brittany is 21 and married almost a year ago. Britanny now lives here in Austin and had gone for a year in San Diego. After her gamma knife operation, we had to wait the two long years. I am so proud of YOU!!! You are such a wonderful example of turning the hurts and pains of this life into positive! May you be ever so BLESSED!!!

--- Pat

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